“Where Purpose Meets Progress – in advancing collaborative priorities and patient community engagement  –  to accelerate progress for Leiomyosarcoma Precision Medicine =  Research – Clinical Trials -personalized treatment and care”.

This website is dedicated to Gilles Frydman and to all the contributors of the original Leiomyosarcoma.info website (listed here ) who provided a valuable compass to guide LMS patients/caregivers/families.
This Leiomyosarcoma research website is also dedicated to the heroes among us, the patients and their families, and the researchers who work tirelessly every day to better understand this rare and complicated sarcoma to advance treatment options and improve survivorship.

NLMSF-SPAEN Publication On Evidence

based unmet needs in LMS research and treatment. Learn more.

General sarcoma information

Scott Okuno, MD Professor of Oncology Mayo Clinic Rochester, MN

"We are glad that you have come to our Leiomyosarcoma Research website  (Leiomyosarcoma.info ) of the National LMS Foundation. We are continuously updating this website to provide information on advances in Leiomyosarcoma research as well as the numerous collaborations that are occurring. The NLMSF has additional resources about Leiomyosarcoma on the  NLMSF.org site. We are interested in your feedback as we continue to strive to improve sharing of Leiomyosarcoma information."

Dr Seth Pollack Director of the Sarcoma Program at the Lurie Cancer Center ROBERT H. LURIE COMPREHENSIVE CANCER CENTER OF NORTHWESTERN UNIVERSITY

“ I love the NLMSF – I love the patient programs held – your signature support advocacy to collaborate with sarcoma centers. LMS is common enough to have had a specific focus initiative- and the NLMSF was many steps ahead of the curve,  to launch the LMS International Research Roundtable  - to support patients in this way, and focus on LMS-specific research and support in the research landscape. Annie and Mitch are such a good team for the LMS Roundtable. They compliment each other with their unique strengths in moving forward to help patients and giving a special spotlight to LMS in particular.”

NLMSF proudly collaborates with these research-related organizations: