NIH/NCI STATISTICS ON SARCOMA AND LEIOMYOSARCOMA:

SOFT TISSUE SARCOMAS (STS): Estimated new cases in 2017: 12,390 6,890 (male) 5,500 (female)
Estimated deaths in 2017: 4,990 2,670 (male) 2,320 (female)

Up to 20% of LMS out of all Sarcomas

SEERS government data from 2009 – 2013: 2,272 cases of STS from 18 cancer centers reporting, so more data is not available to reveal a more accurate statistical breakdown.

58% STS – local site (stages 1, 2)

18% regional (stage 3 – lymph node involvement)

14% Distant metastasis

10% unknown

NOTE: Sarcomas are not really “staged” because lymph nodes are rarely affected.

4.2 out of 100,000 cases for all STS

64% survival of STS – at 5 years from initial diagnosis

What does rare cancer designation mean: RARE CANCER = 15 cases per 100,000