ACCELERATE LMS RESEARCH IN A BIG WAY – Patient Powered!
RESEARCH SAVES LIVES! THE Rare Cancer Research Foundation came together with the National Leiomyosarcoma Foundation in 2017 to bring an important research platform for patient engagement – it is a patient driven initiative that is important to advance research for accelerating treatment options.
Consenting to share tumor tissue ahead of a scheduled surgery is the way forward to impact LMS research in a big way. De -identified tumor tissue will be sent to the Kock Institute of MIT – Dr. Jesse Boehm head of this research initiative, working with Barbara Van Hare, Director of Patient Research and Advocacy Liaison will work with each consenting patient and make the process seamless and easy. All a patient has to do is decide to consent and sign the form given by Pattern.org.
Read more about it here to understand the concept of such Patient -Driven Research impact:
How “Pattern.org” works and step by step guidance for patients to easily participate:
Donating Tumor Tissue starts the ball rolling and moves the needle forward. Why should a patient
Consider doing this ahead of a surgery coming up? Here is why: https://pattern.org/whyDonate
For more questions about this program, contact Barbara Van Hare directly – she is happy to answer all your questions and allay all your possible concerns so that you feel comfortable with participating in this GIANT step forward for global LMS Research: email@example.com or firstname.lastname@example.org / 303 808-3437.