RCRF Cancer Cell Line Project

RCRF  Cancer Cell Line project partnership with the NLMSF established to include leiomyosarcoma ANNOUNCED APRIL 9, 2017:

The NLMSF encourages participation in this patient-driven project.

THE RARE CANCER RESEARCH FOUNDATION AND THE NLMSF HAVE PARTNERED TO INCLUDE LMS AS ONE OF THE RARE CANCERS REPRESENTED IN THIS PILOT PROGRAM:

The Cancer Cell Line project is an opportunity for patients to contribute to research in a big way – a personal way.

If a patient is facing a biopsy or surgery to extract an LMS diagnosed tumor –  tissue from the procedure(s) can be offered to the Rare Cancer Research Foundation (RCRF) through a simple consent form.  The RCRF takes care of the rest of the coordination to make sure your de-identified tumor sample is sent to the Broad Institute of MIT / Harvard laboratories for cell processing and hopeful growth.

To learn more about how to be empowered to direct your cancer tissue sample to research projects, for the development of research models, GO TO https://www.pattern.org/

This offers a huge opportunity to move the needle forward for potential research initiatives across the globe.  Researchers can access de-identified data for research initiatives/studies they wish to pursue.If you have questions about this program please contact   Annie Achee at  303  783-0924  or 303  808-3437

Announcement in CURE MAGAZINE; The National Leiomyosarcoma Foundation Is Joining A Tumor Sample Project To Advocate For LMS Patients

If a patient is facing a biopsy or surgery to extract an LMS diagnosed tumor –  tissue from the procedure(s) can be offered to the Rare Cancer Research Foundation (RCRF) through a simple consent form.  The RCRF takes care of the rest of the coordination to make sure your de-identified tumor sample is sent to the Broad Institute of MIT / Harvard laboratories for cell processing and hopeful growth.

www.rarecancer.org

The Rare Cancer Research Foundation (RCRF) is dedicated to curing rare cancers through strategic investments and innovative collaborations that facilitate effective research and accelerate deployment of promising therapies.

www.pattern.org

Pattern.org, part of the Rare Cancer Research Foundation, is a patient-research matching program that enables patients to directly donate their tumor tissue and medical data to research

For technical questions about the RCRF and Pattern.org:

Barbara Van Hare

Director of Foundation Partnerships

Rare Cancer Research Foundation

barbara@rcrf.org

(816) 868-6352