NLMSF and ORIEN: COLLABORATIVE ADVOCACY SUPPORT
The National Leiomyosarcoma Foundation (NLMSF) recognizes Oncology Research Information Exchange Network (ORIEN) as a leading platform in precision cancer research and patient-centered treatment support. ORIEN’s efforts further NLMSF’s mission, which includes enhancing precision cancer medicine efforts patient education and advocacy for programs that offer opportunities for enhancing patient research through benefits.
ORIEN launched in 2014. Dr. Raphael Pollock, NLMSF’s first Medical Advisory Committee member introduced ORIEN to NLMSF at the 2015 Patient-Family Education Symposium at the James Cancer Center, the first cancer center to partner with ORIEN. Since then, ORIEN has continued to expand the number of leading cancer centers throughout the country with which it collaborates. Together, ORIEN and the member cancer centers promote individualize patient care through enhanced discovery-based, diverse-population data for patient-specific clinical decision support, and the building of evidence-based approaches to meet patient needs. This is a most important proactive advocacy platform for the Leiomyosarcoma, rare cancer patient community.
The NLMSF is proud to support ORIEN in its precision cancer collaboration with leading cancer centers and institutions to further advance cancer research, especially for rare cancers, and continuous patient/family awareness, which is key.
ORIEN strongly encourages researchers who are not currently part of the ORIEN system to submit research projects for collaborative partnerships. A prospective research collaborator would submit a research project request through the ORIEN website for review. If two or more ORIEN members accept the research proposal, M2GEN will facilitate the collaboration.
Moving from a Reactive to a Proactive Approach to Cancer Care by DNAnexus, 2017